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john maltby

New York Alliance: "What Happens When I Die?"

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New York Alliance: "What Happens When I Die?"

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Reality #1 - We are in a new world for the Developmentally Disabled in New York, and this is a first attempt to answer complex questions.

Reality #2 - Parents will be the ones who come up with creative solutions.

This is a good overview by John Maltby and Carol Napierski of New York Alliance for Inclusion and Innovation, but this is not a roadmap. Many questions are just starting to be asked.

Support Systems for people with I/DD that were based in congregate care and sheltered work may no longer be desirable or sustainable, however, in some ways they were predictable. As these systems evolve to become more person-centered, families have expressed concern for how to ensure future health, safety and a fulfilled life for their son or daughter in a new world of risk. Our goal in this work is to help people with I/DD and their families understand current systems and think about ways to create “safety networks” addressing changing risks, as options for support become more diffuse and in some ways more challenging. We hope that this work adds to the toolkit available to people with I/DD and their families, and we welcome your feedback.
— John Maltby and Carol Napierski of New York Alliance for Inclusion & Innovation

New York Alliance for Inclusion and Innovation, is an “Agency of Agencies” in New York State, and it serves as a catalyst for positive change and a leading resource for individuals with disabilities, their families, and the organizations supporting them. They do this through: 

  • Advocacy 

  • Education & Training 

  • Technical Assistance & Practice Improvement 

  • Advancing Sound Public Policy

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LAUNCHED: New York Housing Resource Center (HRC) for People with Intellectual/Developmental Disabilities

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LAUNCHED: New York Housing Resource Center (HRC) for People with Intellectual/Developmental Disabilities

Last week, Carol Napierski of NYSACRA and John Maltby of the Westchester Institute for Human Development announced their newest online resource for housing in New York State:

"The New York Housing Resource Center (HRC) for People with Intellectual/Developmental Disabilities was developed by NYSACRA with funds received through the Balancing Incentive Program grant (BIP). The HRC will act as a clearinghouse for information and resources for housing professionals across the state and will help to foster collaboration between and among the housing industry and related professions, service provider agencies and people with I/DD. The HRC will provide all housing stakeholders with technical assistance on housing matters and community training for people with Intellectual and Developmental Disabilities and their families."

NYSACRA is a catalyst and leading advocate for people who have developmental disabilities and organizations that support them.

The Westchester Institute for Human Development (WIHD) addresses the needs of the community through professional education programs, technical assistance, research, and dissemination of information.


A couple of thoughts:

  • Combined with Dr Jo Anne Schneider'a "Housing Options" report, we are starting to see a roadmap of options and paths that we can explore. 
  • There is a Housing Navigator section on the HRC website that I am exploring. I have access as I am a Housing Navigator in New York State. Most of the resources are public for now and feel free to ask me any questions that may be missing. 
  • Carol and John have stated that this HRC website is a work in process, so again, feel free to ask questions. 
  • OPWDD - There are now many readers from OPWDD of this Blog and we need more interaction with them. This is a complicated process at best, and we need conversations directly with them rather than through third parties. There are many things that I "think they are thinking" at this point, but we need to get to the "next level" with OPWDD to see where we are going. 

Again, a great start for a potentially great resource, and we need to get to the next level of conversation. 

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NYSACRA - May 31, 2017 New York City Regional Housing Meeting

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NYSACRA - May 31, 2017 New York City Regional Housing Meeting

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New York City Regional Housing Alliance Creating Homes and Fostering Independence

The New York State Association of Community and Residential Agencies (NYSACRA) was awarded a Balancing Incentive Program (BIP) grant to provide education that promotes and enhances individual housing options. Early into the grant, NYSACRA hosted a series of regional forums to gain insight into the unique considerations involved in creating or obtaining housing within a region. There was at least one forum in each of the five Developmental Disability Regions. 

Results of the regional housing forum meetings were included in the Report to theHousing Task Force published in December of 2015. The next stage in this work is to meet again in each region and assist in creating new housing alliances or enhancing existing ones. Developing and maintaining a working collaborative regionally with ALL housing stakeholders is truly essential in generating new housing opportunities. 

NYSACRA is pleased to sponsor a morning conference on how to partner with developers, lenders, government stakeholders, provider agencies and people receiving support and their families to create more independent housing options for people with intellectual and developmental disabilities.  

Date:          May 31, 2017
Time:          10:00-12:30
Location:    AHRC NYC
                     83 Maiden Lane
                     NY, NY 10038

Click hereto register

Click here to download the report to the housing task force.
Questions please contact Carol Napierski caroln@nysacra.org

 

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LEND Research Project:  Library Access for Individuals with I/DD

LEND Research Project: Library Access for Individuals with I/DD

John Matby of WIHD

John Matby of WIHD

From our friend John Maltby of the Westchester Institute for Human Development (WIHD):

Dr. Patricia Patrick explains a research effort here at WIHD which she leads. Please help to get this survey out to as many people as possible, all results are anonymous. Thanks for your help.


Westchester Institute for Human Development (WIHD) is a local organization that provides services and supports for individuals with disabilities and their families/caregivers. They are currently conducting a research study to better understand library accessibility for individuals with disabilities. Ultimately, the goal of the study is to provide libraries with possible recommendations on how to improve their ability to serve all people. This is something that can directly impact you, your child or the individuals to whom you provide support.  Please take a few moments to complete the appropriate anonymous survey below to help make a difference! 

Click here for the survey for family members or caregivers 

Click here for the survey for individuals with disabilities 

 

 

Hawthorne Foundation - "Families United: Exploring Housing and Self-Direction"

Hawthorne Foundation - "Families United: Exploring Housing and Self-Direction"

Hawthorne Executive Director Tina Covington in their new Financial Intermediary space. 

Hawthorne Executive Director Tina Covington in their new Financial Intermediary space. 

Last week, The Hawthorne Foundation hosted a meeting for roughly 25 families that are looking for long-term housing and community options for their Developmentally Disabled adult children. Dustin Sweeney, my 19 year old Autistic son, has been at Hawthorne Country Day School for years. However, many parents at the meeting were Westchester families new to Hawthorne. 

The goals were:

  • Explore Self-Direction Housing, Community, and Adult options with guest speaker Baturu Mboge of the Westchester Institute for Human Development
  • Introduce Hawthorne's New Financial Intermediary (FI) and training center; and
  • Introduce Hawthorne's staff which included:
    • Tina Covington - Executive Director
    • Eileen Bisordi - Hawthorne Founder
    • Fay Dohman - Coordinator of Self Direction and Community Services

Baturu Mboge was very knowledgeable about the all the changes in the market, and this diagram below shows the high level view of the shifting sands of programming from Agency Based to Self-Directed models. The good news is: decisions are being made by parents, and this creates a more responsive market for adult services. The bad news is: questions of "what happens when the parents die?" remain. 

The shift from "Agency Based" to "Self-Directed" models. 

The shift from "Agency Based" to "Self-Directed" models. 

Hawthorne has made a bold move in creating and funding this new Financial Intermediary (FI) space for families. It is always hard to predict where we are going in the New York State OPWDD market, but administrative services could easily be streamlined into one agency. The FI can work as a watchdog over money and budgets away from programming, jobs, and housing decisions. In this new era of Self-Direction, we must think differently and I really credit the Hawthorne staff and Board Director Jackie Ceonzo for starting this initiative. They are embracing the new Self-Direction models in the OPWDD world. For more information, contact:


Fay Dohman - Hawthorne Coordinator of Self Direction and Community Services

200 Clearbrook Road, Suite 114, 

Elmsford, NY 10523
Office - (914) 592-8526 ext. 3046

Mid-Hudson Housing Alliance – Creating Homes and Fostering Independence

Mid-Hudson Housing Alliance – Creating Homes and Fostering Independence

New Horizons Foundation

New Horizons Foundation

On November 7, 2016, I attended the first "Mid-Hudson Housing Alliance", which was sponsored by our friend Carol Napierski of NY State Association of Community and Sam Laganaro of New Horizons Resources. It was a regional meeting focused on the "Mid-Hudson" region roughly defined as north of NYC and south of Albany.

Topics included:

  • Opening Remarks by organizer Sam Laganaro, New Horizons Resources
  • Value of Housing Alliances Ken Regan; Regan Development Corp.
  • Why we are Here? - Overview of Vision and Resources: Monica Robinson and Jennifer Rodriguez of New Horizons Resources
  • Why Collaboration has such an Impact on Creation of Housing: John Maltby; Westchester Institute for Human Development
  • Panel Discussion- Strategies to Creating a Viable Housing Network in the Mid-Hudson Valley:
    • Mary Ellen Moeser; Home and Community Living (HCL) OPWDD
    • Benny Serrano; USDA
    • Doug Olcott; Community Preservation Corp., Hudson Valley
    • Lisa Irizarry; NYS Homes and Community Renewal (HCR)
    • Jeffery Fox, Ph.D., Abilities First, Inc.
    • Ken Kearney; Kearney Realty Group

This was a first meeting for the group, and it was a very good effort to bring together some legacy and new parties into the discussion about housing and communities for adults with Developmental Disabilities. It is my continued belief that REAL innovation in this community will come from "Self-Direction" models as pictured below:

There is still a default in the DD Community to "what has been done" rather than "what can be done". "Integration" with a "Self-Directed" budget is where real innovation (and cost reduction) can be found for the next generation of DD adults.

First Diploma in 25+ Years: New York State Housing Navigator

First Diploma in 25+ Years: New York State Housing Navigator

The Housing Navigator is a certificate, not a diploma, and I expect to put the New York State Housing Navigator experience to work in 2017. 

Special thanks to John Maltby of the Westchester Institute for Human Development and Carol Napierski of NYSACRA (NY State Association of Community and Residential Agencies) for running and organizing an informative and thought provoking seminar. There are now over 50 Housing Navigators across New York State. 

Here is my review of the Housing Navigator class