Viewing entries tagged
carol napierski

New York Alliance: "What Happens When I Die?"

Comment

New York Alliance: "What Happens When I Die?"

NYAII-full-color.jpg

Reality #1 - We are in a new world for the Developmentally Disabled in New York, and this is a first attempt to answer complex questions.

Reality #2 - Parents will be the ones who come up with creative solutions.

This is a good overview by John Maltby and Carol Napierski of New York Alliance for Inclusion and Innovation, but this is not a roadmap. Many questions are just starting to be asked.

Support Systems for people with I/DD that were based in congregate care and sheltered work may no longer be desirable or sustainable, however, in some ways they were predictable. As these systems evolve to become more person-centered, families have expressed concern for how to ensure future health, safety and a fulfilled life for their son or daughter in a new world of risk. Our goal in this work is to help people with I/DD and their families understand current systems and think about ways to create “safety networks” addressing changing risks, as options for support become more diffuse and in some ways more challenging. We hope that this work adds to the toolkit available to people with I/DD and their families, and we welcome your feedback.
— John Maltby and Carol Napierski of New York Alliance for Inclusion & Innovation

New York Alliance for Inclusion and Innovation, is an “Agency of Agencies” in New York State, and it serves as a catalyst for positive change and a leading resource for individuals with disabilities, their families, and the organizations supporting them. They do this through: 

  • Advocacy 

  • Education & Training 

  • Technical Assistance & Practice Improvement 

  • Advancing Sound Public Policy

Comment

LAUNCHED: New York Housing Resource Center (HRC) for People with Intellectual/Developmental Disabilities

Comment

LAUNCHED: New York Housing Resource Center (HRC) for People with Intellectual/Developmental Disabilities

Last week, Carol Napierski of NYSACRA and John Maltby of the Westchester Institute for Human Development announced their newest online resource for housing in New York State:

"The New York Housing Resource Center (HRC) for People with Intellectual/Developmental Disabilities was developed by NYSACRA with funds received through the Balancing Incentive Program grant (BIP). The HRC will act as a clearinghouse for information and resources for housing professionals across the state and will help to foster collaboration between and among the housing industry and related professions, service provider agencies and people with I/DD. The HRC will provide all housing stakeholders with technical assistance on housing matters and community training for people with Intellectual and Developmental Disabilities and their families."

NYSACRA is a catalyst and leading advocate for people who have developmental disabilities and organizations that support them.

The Westchester Institute for Human Development (WIHD) addresses the needs of the community through professional education programs, technical assistance, research, and dissemination of information.


A couple of thoughts:

  • Combined with Dr Jo Anne Schneider'a "Housing Options" report, we are starting to see a roadmap of options and paths that we can explore. 
  • There is a Housing Navigator section on the HRC website that I am exploring. I have access as I am a Housing Navigator in New York State. Most of the resources are public for now and feel free to ask me any questions that may be missing. 
  • Carol and John have stated that this HRC website is a work in process, so again, feel free to ask questions. 
  • OPWDD - There are now many readers from OPWDD of this Blog and we need more interaction with them. This is a complicated process at best, and we need conversations directly with them rather than through third parties. There are many things that I "think they are thinking" at this point, but we need to get to the "next level" with OPWDD to see where we are going. 

Again, a great start for a potentially great resource, and we need to get to the next level of conversation. 

Comment