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New York Alliance: "What Happens When I Die?"

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New York Alliance: "What Happens When I Die?"

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Reality #1 - We are in a new world for the Developmentally Disabled in New York, and this is a first attempt to answer complex questions.

Reality #2 - Parents will be the ones who come up with creative solutions.

This is a good overview by John Maltby and Carol Napierski of New York Alliance for Inclusion and Innovation, but this is not a roadmap. Many questions are just starting to be asked.

Support Systems for people with I/DD that were based in congregate care and sheltered work may no longer be desirable or sustainable, however, in some ways they were predictable. As these systems evolve to become more person-centered, families have expressed concern for how to ensure future health, safety and a fulfilled life for their son or daughter in a new world of risk. Our goal in this work is to help people with I/DD and their families understand current systems and think about ways to create “safety networks” addressing changing risks, as options for support become more diffuse and in some ways more challenging. We hope that this work adds to the toolkit available to people with I/DD and their families, and we welcome your feedback.
— John Maltby and Carol Napierski of New York Alliance for Inclusion & Innovation

New York Alliance for Inclusion and Innovation, is an “Agency of Agencies” in New York State, and it serves as a catalyst for positive change and a leading resource for individuals with disabilities, their families, and the organizations supporting them. They do this through: 

  • Advocacy 

  • Education & Training 

  • Technical Assistance & Practice Improvement 

  • Advancing Sound Public Policy

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CSH: The Next Generation of Supportive Housing in New York State (and NYC!)

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CSH: The Next Generation of Supportive Housing in New York State (and NYC!)

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From our friend Kristin Miller of CSH

CSH "blends our experience and dedication with a practical and entrepreneurial spirit. We uncover ways to move forward even in the most complex environments, so our partners can achieve stability, strength and success for the most vulnerable people in the communities where they live."


Kristin Miller update:

Kristin Miller of CSH

Kristin Miller of CSH

"Several new Requests for Proposals (RFP’s) have recently been released, including the Empire State Supportive Housing Initiative (ESSHI) and NYC 15/15 supportive housing program, offering new opportunities for supportive housing development across the state. In the coming weeks CSH will be releasing a resource guide to assist nonprofit supportive housing developers. 

There are 1200 units in ESSHI included in this next round as a sub-set to this larger world of supportive housing. The OPWDD segment and ESSHI funds will be a smaller slice of the units. That said – it is indeed a new and ground breaking housing development resource for the OPWDD population.

The resource guide includes key activities, participants and risk considerations at each step in the development process, and helpful tools for discussions with board members, staff and other key stakeholders. We'll walk you through new financing opportunities, zoning incentives, effective partnerships and how to navigate the challenges in site control. Read more about the resource guide here.

In the meantime feel free to contact our New York based loan officers:
Jen Trepinski for the five boroughs and Maygen Moore for upstate development."

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New York Times: In Health Bill’s Defeat, Medicaid Comes of Age

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New York Times: In Health Bill’s Defeat, Medicaid Comes of Age

Last week, despite their desire to repeal Mr. Obama’s biggest domestic legacy, some Republicans recognized that any bill that would lead to such drastic cuts in Medicaid would simply hurt too many of their constituents.
— New York Times
 

The New York Times wrote a good historical perspective of Medicaid based on last week's issues in Washington surrounding the Affordable Care Act. Obviously this is a big topic for the Developmentally Disabled community. 

Read the full story at The New York Times. 


"Still, last week’s defeat reflected how hard it is to take away an entitlement. It also showed the broad and deep reach of Medicaid, which covers about six times as many people as the private marketplaces created under the A.C.A. but, perhaps because the markets are more strongly associated with President Barack Obama and his law, got less attention in this month’s contentious debate."

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New York State’s First ‘Autism Action Plan’ by Assemblymember Angelo Santabarbara

New York State’s First ‘Autism Action Plan’ by Assemblymember Angelo Santabarbara

We were recently introduced to the Office of Assemblymember Angelo Santabarbara from New York State Assembly District 111, and he is the father of an Autistic teenage son. In a recent press release about a new Autism Action Plan in New York, he stated:

Parents, siblings, friends and other caretakers of people with autism spectrum disorder across the state can take comfort in knowing that they are not alone and our work is not done. Autism Action is just the beginning. Together we face the challenges many autism families face, but we can overcome those challenges together.
— Assemblyman Angelo Santabarbara
Angelo and Michael Santabarbara

Angelo and Michael Santabarbara

"Autism Action NY" is a five-point plan that is focused on:

  • increasing job opportunities;
  • providing independent housing options;
  • improving access to information;
  • assisting in communication; and
  • creating a centralized location for services in New York.

There are times when these types of plans have been seen as "window dressing" by Albany politicians. However, as a father of an Autistic teenager, I am very optimistic about this initiative.

One of my goals has been to figure out models where "Inclusion" can include Veterans and the Developmentally Disabled in supportive housing together. On this weekend of Army vs Navy football, this Navy family has a new Army friend in Albany as Assemblymember Santabarbara has served in the Army Reserves.

Contact/Follow Assemblymember Santabarbara here.

Angelo Santabarbara @ Facebook

#GoNavy

Army Reservist Angelo Santabarbara

Army Reservist Angelo Santabarbara

Dustin Sweeney & Midshipman Dylan Sweeney with Dustin's Caregiver Fazie

Dustin Sweeney & Midshipman Dylan Sweeney with Dustin's Caregiver Fazie