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Reality #1 - We are in a new world for the Developmentally Disabled in New York, and this is a first attempt to answer complex questions.

Reality #2 - Parents will be the ones who come up with creative solutions.

This is a good overview by John Maltby and Carol Napierski of New York Alliance for Inclusion and Innovation, but this is not a roadmap. Many questions are just starting to be asked.

Support Systems for people with I/DD that were based in congregate care and sheltered work may no longer be desirable or sustainable, however, in some ways they were predictable. As these systems evolve to become more person-centered, families have expressed concern for how to ensure future health, safety and a fulfilled life for their son or daughter in a new world of risk. Our goal in this work is to help people with I/DD and their families understand current systems and think about ways to create “safety networks” addressing changing risks, as options for support become more diffuse and in some ways more challenging. We hope that this work adds to the toolkit available to people with I/DD and their families, and we welcome your feedback.
— John Maltby and Carol Napierski of New York Alliance for Inclusion & Innovation

New York Alliance for Inclusion and Innovation, is an “Agency of Agencies” in New York State, and it serves as a catalyst for positive change and a leading resource for individuals with disabilities, their families, and the organizations supporting them. They do this through: 

  • Advocacy 

  • Education & Training 

  • Technical Assistance & Practice Improvement 

  • Advancing Sound Public Policy

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